Which way is up??

It's safe to say I wasn't anywhere near being ready, because it's not about me and my flesh it is about god and his timing.

I'm still seeking his face on fulfilling the vision he has given me. I just want to make my father proud.

This moment I'm in I feel so confused. There are so many pieces needed to produce the final product. I feel like I'm not getting anywhere, like I'm just a collector of gadgets that have no use separately.

It's not easy. I won't give up! I will continue to live forward and sooner or later it will all come togeter!

~Honestly Qui~

I'm BACK

This time I think I'm really ready to open up and begin to share my story! 

I have a different approach, I have God guiding me and the main focus and purpose is to help those that are like me or those that want to support and understand those like me! 

Short and sweet little bursts is what you can expect with Q & A sessions

I want to know how I can help/encourage/guide YOU!!

~QUI THE LUPIE~

Learn about Lupus - sleep

Hello lupus world.....

My name is Quiondra Booker and I've been diagnosed with SLE Lupus for 10yrs (and a few other autoimmune disorders). I do not claim to know it all, but I have experienced quite a bit. In this blog I will delve into Lupus as well as other autoimmune disorders/diseases, help the non autoimmune understand what it is we go through so they can assist friends/family sufferers. 

I have gone through several stages with this disease from denial to now the stage of being ready to share my journey. In doing so through Facebook I have gotten lots of interest for more information, personal advice, etc. I prayed on it and got the revelation to begin a blog with the guidance of God I'm moving forward!

So here I am!

I encourage you to comment, ask questions, post suggestions. This is our blog!

I have an idea to invite others to share on their autoimmune disease/disorder as well!

Lupus Fact #1 (what perfect timing)

We can't sleep at night!

Why?

"Survey studies find that about 50 to 60% of individuals with lupus report poor sleep.  This rate is consistent with general studies of other chronically painful conditions.  Poor sleep in SLE has been associated with fatigue, objective measure of disease activity, depressed mood, and joint pain." 

To name a few. This is a major problem and I am no stranger to insomnia.....for me it started as a result of being in pain...then as a result of taking steroids....now it is just a bad formed habit that I can't seem to shake. I do sleep some nights , but my body and mind have become accustomed to being up at night and this is when I do my best work lol. Oddly I've always been a bit of a night owl cranking out high school/college papers at the wee hours of the night after housework is done and children are sleeping. 

Don't want this to be to drawn out so I'll end it here for tonight. 

Thank you for tuning in leave me comments or feedback! Until next time! 

~Qui The Lupie~

"LOVE, HOPE, SUPPORT, CURE" 

The Intro "Understanding"

Starting with the basics.....everyone is not educated in the area of "illness" that is one of the main reasons for this blog.

What is an autoimmune disease?

An autoimmune disorder occurs when the body's immune system attacks and destroys healthy body tissue by mistake. There are more than 80 types of autoimmune disorders. Causes. The white blood cells in the body's immune system help protect against harmful substances.
What does it mean to have an autoimmune disease?
Antigen. A foreign substance that triggers the production of antibodies when it is introduced into the body. Autoimmune disease. A disease that results when the immune system mistakenly attacks the body's own tissues.
A disease in which the body's immune system attacks healthy cells.
Most common types
• Rheumatoid arthritis

• A chronic inflammatory disorder affecting many joints, including those in the hands and feet.

• Type 1 diabetes

• A chronic condition in which the pancreas produces little or no insulin.

• Multiple sclerosis

• A disease in which the immune system eats away at the protective covering of nerves.

• Vasculitis

• An inflammation of the blood vessels that causes changes in the blood vessel walls.

• Alopecia areata

• Sudden hair loss that starts with one or more circular bald patches that may overlap.

• Lupus

• An inflammatory disease caused when the immune system attacks its own tissues.

• Polymyalgia rheumatica

• An inflammatory disorder causing muscle pain and stiffness around the shoulders and hips.

• Ankylosing spondylitis

• An inflammatory arthritis affecting the spine and large joints.

• Temporal arteritis

• An inflammation of blood vessels, called arteries, in and around the scalp.

• Sjögren's syndrome

• An immune system disorder characterized by dry eyes and dry mouth.
• Celiac disease

• An immune reaction to eating gluten, a protein found in wheat, barley, and rye.